NZ Charities Map

The Angelman Network

Registration number CC46746Sector: People with disabilitiesWarkworth

Purpose: Our Mission Statement: “Connecting and supporting those impacted by Angelman Syndrome” We aim to do this, by: - Accessing and distributing accurate information about Angelman Syndrome sourced locally and internationally - Raising awareness of Angelman Syndrome in New Zealand among clinicians, therapists, schools, agencies and the community - Connecting and helping NZ Angelman parents, guardians, care givers and families, feel valued and supported - Working with national groups to advocate for rare disorders, AAC access, inclusive education, best current care & treatments, and caregiver wellbeing - Pursuing opportunities to support global networking and research, related to Angelman Syndrome

Activity
Provides advice / information / advocacy
Address
21 Wilson Road, Warkworth 0981
Phone
021 1382878
Email
angelmannetwork@gmail.com
Website
angelman.org.nz
Social
Facebook

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